Our first day "out"

February 12, 2015 - Since Addie hasn't had much of an appetite since her transplant, the PA on the transplant service suggested trying some of Addie's old formula.  Since this was such a "normal" thing for Addie pre-transplant, they are thinking it will bring comfort to Addie and will allow us to get nutrition in her this way.  Addie did fairly well with the formula.  Again, we are taking it slow - but at least she is taking it without too much fuss.

The pulled her IV fluids down for 4 hours this evening and they gave Addie a pass so we could go to the Ronald McDonald house for a little.  They have found that when kids are discharged from the hospital, they actually do much better and progress much faster.  So, since we have a room (more like a small apartment) at the Ronald McDonald House - we took Addie to our room for a few hours.  We were so excited to be out of the hospital room for a little and to feel a little more relaxed!  Addie still doesn't have a lot of energy, so by the time we got there (even though we pushed her in a wheel chair)- she was exhausted and just wanted to snuggle on the couch.  Which was fine by me!