Unfortunately, Addie was uncomfortable most of the day. She is also terrified of the nurses. We experienced this with other hospitalizations prior to this one. She thinks anyone coming into the room is going to hurt her. And in all honesty, they are. But a 5 year old, hopped up on pain meds and just coming out of anesthesia can't understand they are only trying to help. Dr. Shindi asked for her NG tube to be pulled in hopes that she would be more comfortable with it out and this would allow her to start drinking. She was able to take a few sips of apple juice but she was very resistant. In fact, Ben was the one giving her sips and encouraging her to drink and when he walked out of the room, she looked at me and said "don't let daddy give me anymore apple juice. I DON'T want it!" Haha, my first glimpse of our Addie's personality. We were able to get her out of bed a few times to use the potty - but the pain was entirely too great and she screamed every time we moved her, so we decided to put her back in diapers until some of the pain subsided. We were sure how Addie would feel about diapers since she is potty trained, but I think they were a welcomed relief knowing that she wouldn't have to get out of bed.
An ultra sound was ordered for first thing this morning. We were able to see how that new liver was looking and how well the blood was flowing. And everything looked beautiful. Blood flow was excellent. Her LFT's were still very high, but certainly trending in the right direction AST was 869 and ALT was 882. Her ammonia was 31!! Without any ammonia scavenger or arginine - her ammonia was normal! What an amazing feeling. We can finally have comfort in knowing that her brain is safe! Thank you God!
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